|Teens With Lupus||
I haven't posted in awhile and I thought I would today. Its coming up on the middle of my fall semester right now. So far I have actually been doing pretty well compared to how I have felt by this time in past years. This time of year is not nice to me though, so I'm cautiously enjoying feeling ok for the moment.
Over the past few months I took on the challenge of switching to new adult doctors at a new hospital. Until the end of the summer I was seeing all my specialists at Children's Hospital. I have had many tests done because of this switch, some of which were not optimal but most weren't too bad. I see my new rheumatologist for the second time in 2 weeks. We discussed adding in Benlysta at my last appointment. Despite feeling not-to-bad right now I still think this is a good idea. With the meds I'm on I still flare up too often for my liking, and when I do I miss too much school and then get stressed and its a never ending cycle. I'm hoping that the Benlysta will be able to help me from having as many flare ups, and maybe even be able to come off of some of my meds, most importantly the steroids. I found out that I already have low bone denisty, so I don't feel that I should continue with them if possible. I will stay on them if I need to, but I would really like to be able to take them out of my daily regiment.
Since I posted here last I switched my major from Biology, to Anthropology with a minor in Biology. The classes were becoming too challenging to keep up with while I was sick, much less get caught up in. I have hope that maybe I will be able to go back and finish that degree and end up still doing something with Biology in the future, but for right now this is my best option. We have to roll with what we've been given.
I keep meaning to post here more often, even if its only a short post. I'm going to make an effort to do that from now on. I hope you all are doing well now that schools been in session for about a month now.
I was diagnosed with lupus four years ago when I was 16. It has been a rough few years but while I have lupus it doesn't have me!