Tomorrow is the end of Lupus Awareness Month and I wish I could have done more. I kept people up to date with lupus facts and sent them to websites for information but I just don't feel like its enough. I went to my local Walk for Lupus Now event a few weeks ago and that was awesome :) My team raised more money this year than last so that was a big success for us. I just want to start planning now, while I have free time before my classes start back up, to plan some bigger events for my community to help raise awareness. God know we all need it! If you have any suggestions leave them in a comment. :)
I went to my rheum appointment yesterday and it went much better than usual. Me and my rheum don't really get along very well so it was nice that we did yesterday. She said since I have more or less been feeling a lot better lately that we didn't need to do blood work (yay! I hate blood work lol) and that I didn't need to be seen again for another 2 months!!! WOOO lol I also get to go down to just 4mg of Medrol which is exciting. I have been on the steroids for over a year now and started at 32mg, so I'm very close to being off of it. I would be thrilled if I could completely come off of them by the end of summer if possible. I had to stop tapering for awhile back in the fall because of a flare up so that kind of pushed back my plans of being off sooner. While I love that they made me feel much better for awhile, being on them for too long isn't good so I'm glad that my body is starting to be well enough that I can continue to come off of them.
Tomorrow is the end of Lupus Awareness Month and I wish I could have done more. I kept people up to date with lupus facts and sent them to websites for information but I just don't feel like its enough. I went to my local Walk for Lupus Now event a few weeks ago and that was awesome :) My team raised more money this year than last so that was a big success for us. I just want to start planning now, while I have free time before my classes start back up, to plan some bigger events for my community to help raise awareness. God know we all need it! If you have any suggestions leave them in a comment. :)
1 Comment
1/4/2014 01:51:22 am
Hi, your blog has me smiling because, although living with such a condition is not something anyone would want, it is great to see that you are doing something positive as a result of being diagnosed yourself - educating and therefore inspiring others!
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December 2013
AuthorI was diagnosed with lupus four years ago when I was 16. It has been a rough few years but while I have lupus it doesn't have me! Categories |